23 May - He is eating :-)
The feeding tube is out! He pulled it out for about the fourth time last night and the speech therapist came and evaluated him and said we'd have a one day trial. He wouldn't eat much for lunch, but dinner he did better. He is quite expressive about his dislike of the food :-) He is feeding himself with his right hand, and doing the grooming things. He is much more alert than the day before.
Finally got someone to talk to me about his condition and what possibilities are ahead. I was really tired of "we don't know" She said well we don't want to make promises that won't happen. I tried to tell her I just needed some generalized something. She said everyone's brain is different. She didn't want me to get the impression that after that large a stroke he'd be what he was before - sometimes I think medical personnel just think you are just plain stupid or that normal people can't face reality. God can do more than they think, or he can chose to leave it to the "norms" They finally gave me a pamphlet of information that they should have given me almost a week ago. It helped to explain a lot. She said it would be a long haul. I told her I knew that already. That nothing was going to be instant. But what are the possibilities? We will see what God decides to do with Bobb's brain and working around the damage. As far as his speech goes - it will be slow going - new neuron pathways will need to be developed. He has both expressive dysfacia and receptive dysfacia. We will have to work on his left-side neglect. We don't know if he'll recover his left visual field deficit. In the end we don't know what he can recover - and there is always hope and a lot of hard work ahead.
We continue to need your prayers from moment to moment. He hasn't lost his faith in the Living Lord, of that I'm sure.
Thank you all for praying! We continue to cherish everyone!
Finally got someone to talk to me about his condition and what possibilities are ahead. I was really tired of "we don't know" She said well we don't want to make promises that won't happen. I tried to tell her I just needed some generalized something. She said everyone's brain is different. She didn't want me to get the impression that after that large a stroke he'd be what he was before - sometimes I think medical personnel just think you are just plain stupid or that normal people can't face reality. God can do more than they think, or he can chose to leave it to the "norms" They finally gave me a pamphlet of information that they should have given me almost a week ago. It helped to explain a lot. She said it would be a long haul. I told her I knew that already. That nothing was going to be instant. But what are the possibilities? We will see what God decides to do with Bobb's brain and working around the damage. As far as his speech goes - it will be slow going - new neuron pathways will need to be developed. He has both expressive dysfacia and receptive dysfacia. We will have to work on his left-side neglect. We don't know if he'll recover his left visual field deficit. In the end we don't know what he can recover - and there is always hope and a lot of hard work ahead.
We continue to need your prayers from moment to moment. He hasn't lost his faith in the Living Lord, of that I'm sure.
Thank you all for praying! We continue to cherish everyone!
2 Comments:
Kayleen, Bobb and Lewis family,
You are so very much in my prayers. Kayleen, as you share about praying with Bobb as you listen from his chest -- this speaks DEPTHS to me of a couple who is not starting to trust the LORD at this point in their lives -- but trusting in Him still.
I will NEVER presume to understand what you are going through. Your life path changed so dramatically in such a short moment. I remember when ours did, too.
Very real questions about what on earth is God doing here?!? And the truth that that kind of question and faith CAN co-exist.
Several years back when I experienced being so very very weary in my spirit that I felt unable to articulate prayers, I also sensed almost tangibly how I was being held up not only by the Spirit himself praying for us but was also carried by the prayers of so many many fellow believers.
Romans 8:26
In the same way, the Spirit helps us in our weakness. We do not know what we ought to pray for, but the Spirit himself intercedes for us with groans that words cannot express.
I commit to continue to pray for you all. And I know there are hundreds doing the same.
By Anonymous, at 3:18 PM
I was very sorry to hear about Mr. Lewis' stroke. Our family is praying for y'all and hope for the best. Like Chris I've been thinking of y'all a lot and remember the times we spent at the house. I will always appreciate your hospitality as we were growing up. We will continue to pray for Mr. Lewis and the whole family. Thank you for taking time to update us around the world who are praying. God Bless.
By Anonymous, at 8:22 PM
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