November 8 - Trip to Portland
Tomorrow we leave for a week of volunteering in the Wycliffe Office in Portland, Oregon. We will be filling in for the bookkeeper for just a week while he's gone for almost a month. We will hopefully try to help keep things a little caught up so when he comes back all will be at least within a range he can see the end of catching up :-)
This will be a week of Occupational Therapy so to speak. Kayleen will do most of the accounting with Bobb along side. Communication will be the biggest issue and relearning a bit of the computer. He is gradually getting better at communicating at home, but outside of home with lots of distractions his vocabulary is pretty limited. Inside of the house it is getting better especially if we allow time! Time sometimes we don't necessarily have.
We want to continue to be useful to Wycliffe and others and this will be an opportunity for us to see how things are moving along and what other skills we need to be concentrating on. There will be a physical therapist who will come and give him two sessions while we are down there for the week, which is more professional help (me being the other help he gets on a regular basis) than he would have gotten otherwise and it will be interesting to see from some other professionals point of view what else might be able to be done about his walking.
The biggest issue right now is the spaciticity - it interferrs with EVERYTHING. His ability to walk better - to lift his foot and get those muscles needed to work all stem from the fact that the spaciticity due to the brain injury wins EVERY time. The therapists don't think there is much else to help with improving his walk because of it. They feel it is mostly a losing battle - though they have said never say never - stranger things have happened. But Bobb was in tears over it. I know and he knows we have a greater God than the brain injury - but then we are back to 'WHAT IS GOD'S WILL" and accepting what ever that is for HIS kingdom.
The spaciticity has a more profound influence on the use of his hand. We are using electronic stimulus with feedback to try and get his brain to connect to his left wrist and hand. Bobb feels there is progress though I've only seen his hand move once of its own volition (or Bobb ordering it too:-) We aren't giving up and have one other option - though the cost of it we don't know after this IF it does not work. The insurance did not pay for this $1200 dollar unit even though it is FDA approved device for hand therapy. UUUGH.
Sorry this wasn't posted before we left :-( Anyway, ..... more on next Blog :-)
This will be a week of Occupational Therapy so to speak. Kayleen will do most of the accounting with Bobb along side. Communication will be the biggest issue and relearning a bit of the computer. He is gradually getting better at communicating at home, but outside of home with lots of distractions his vocabulary is pretty limited. Inside of the house it is getting better especially if we allow time! Time sometimes we don't necessarily have.
We want to continue to be useful to Wycliffe and others and this will be an opportunity for us to see how things are moving along and what other skills we need to be concentrating on. There will be a physical therapist who will come and give him two sessions while we are down there for the week, which is more professional help (me being the other help he gets on a regular basis) than he would have gotten otherwise and it will be interesting to see from some other professionals point of view what else might be able to be done about his walking.
The biggest issue right now is the spaciticity - it interferrs with EVERYTHING. His ability to walk better - to lift his foot and get those muscles needed to work all stem from the fact that the spaciticity due to the brain injury wins EVERY time. The therapists don't think there is much else to help with improving his walk because of it. They feel it is mostly a losing battle - though they have said never say never - stranger things have happened. But Bobb was in tears over it. I know and he knows we have a greater God than the brain injury - but then we are back to 'WHAT IS GOD'S WILL" and accepting what ever that is for HIS kingdom.
The spaciticity has a more profound influence on the use of his hand. We are using electronic stimulus with feedback to try and get his brain to connect to his left wrist and hand. Bobb feels there is progress though I've only seen his hand move once of its own volition (or Bobb ordering it too:-) We aren't giving up and have one other option - though the cost of it we don't know after this IF it does not work. The insurance did not pay for this $1200 dollar unit even though it is FDA approved device for hand therapy. UUUGH.
Sorry this wasn't posted before we left :-( Anyway, ..... more on next Blog :-)
posted by Bobb & Kayleen at
9:24 AM
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